Introduction
This week marks #MigraineAwarenessWeek, a time to shed light on the often misunderstood and debilitating condition that affects millions worldwide. Migraines are not simply “bad headaches” – they are complex neurological disorders that can significantly impact one’s life. I’d like to share my personal journey with migraines, from the early days of uncertainty to finding relief through self-care and awareness.
The Early Days of Migraine
I can’t pinpoint the exact moment when my journey with migraines began, but I was in my early twenties, working in the hectic world of hospitality operations. Back then, I had no idea what was happening when those excruciating headaches struck. Two memorable incidents stand out vividly in my memory.
The Birmingham Episode
One particularly harrowing experience occurred when I was on duty in Birmingham, miles away from my home in Derby. The pain was unbearable, and I had to hand my keys to a supervisor, seeking refuge in a darkened office. I curled up under the desk, desperately waiting for relief. The noise and light of the surroundings were unbearable, making me feel isolated and helpless. When I could finally see well enough to drive home, the journey felt like an eternity. I pulled over frequently, calling my mum for comfort and sobbing about wanting to get home whilst feeling incapable of driving. Those thirty-odd miles on the A38 were a nightmare I’ll never forget.
The Theme Park Conference
Another unforgettable incident happened during a work conference – at a theme park! The day was going well until one of the rides triggered a migraine, and I ended up missing out on the rest of the fun. The only thing I could do was lie down in a dark room and hope it passed soon, only to wake up to be sick and then be full of energy just as everyone else was ready for bed.
Searching for Solutions
My journey with migraines led me to seek help from several doctors. I tried various medications, but none seemed to provide lasting relief. It wasn’t until many years later that I discovered Sumatriptan, which effectively combats the headache during an attack, although I still experience other debilitating symptoms and after-effects. To reduce the frequency of attacks, I also started taking preventative medication.
The Mystery of Migraine Triggers
Throughout my journey, I’ve never been able to identify the exact cause of my migraines. I’ve been advised to give up cheese, chocolate, and even tea – a challenging prospect for someone who enjoys these treats, I mean, have you met me?! Not to say I haven’t tried but it actually made no significant changes in the frequency of attacks.
There are numerous potential triggers for migraines, and they can vary greatly from person to person. In my case, factors like irregular sleep patterns, unsocial working hours, frequent travel, screen exposure, harsh lighting (office florescent strip lights are the worst!), certain smells (for me it’s sweet perfume, cigarette smoke and intense food aromas) and workplace stress all likely played a role. Hormones and weather changes also seemed to contribute, but these were beyond my control.
The Many Faces of Migraine
It’s essential to understand that migraines come in different forms, and each type may present unique challenges:
1. Migraine without Aura: This is the most common type of migraine. It’s characterized by severe headache pain on one side of the head, nausea, and sensitivity to light and sound.
2. Migraine with Aura: About one in four migraine sufferers experience this type, which includes visual disturbances or other sensory changes before or during the headache.
3. Chronic Migraine: If you have headaches on 15 or more days per month for at least three months, with at least eight days being migraines, you may have chronic migraine.
4. Vestibular Migraine: This type is accompanied by dizziness and balance problems.
5. Menstrual Migraine: Some women experience migraines that coincide with their menstrual cycle.
6. Hemiplegic Migraine: This rare type of migraine can cause temporary paralysis or weakness on one side of the body before or during the headache.
7. Cluster Headaches: Often called “suicide headaches” due to their intensity, cluster headaches are characterized by severe, one-sided head pain that occurs in clusters or patterns.
Finding Relief Through Self-Care
As I progressed into my late thirties and settled into office work, I started focusing on the aspects of my life that I could control. Slowing down, practising self-care, and being proactive about managing my migraines became essential. I developed an awareness of my triggers and early warning signs, enabling me to take action before an attack became debilitating.
I also spoke with my employer – they made adjustments to help, such as considering where in the office I sat, allowing more days working from home and providing flexibility for preventative care appointments – I regularly see a chiropractor to help relieve the build-up of tension I get in my neck and shoulders that is a contributing factor.
More recently I’ve taken the path of self-employment to have more control over my working hours and the kind of work I do – being able to work from home and plan to rest around intensive periods of work has helped reduce the impact on my overall wellbeing.
Today, I take my medication as needed to continue functioning, plan periods of rest after intensive mental work, and limit my alcohol consumption, as even a single G&T can trigger a migraine for me. Acceptance has also been a vital part of my journey. I’ve come to terms with the fact that migraines are a part of my life, but they don’t define me. In fact, I still enjoy a theme park trip and a rollercoaster ride – only a few weeks ago I was at Blackpool Pleasure Beach! I just knew to expect the following day to be a definite rest and recovery day.
Essential Facts About Migraines
- Global Impact: Migraine is the third most common disease in the world, affecting 1 in 7 people globally.
- Not Just a Headache: Migraines are not merely headaches; they are complex neurological conditions often accompanied by nausea, vomiting, and sensory sensitivities.
- Undiagnosed and Undertreated: Many migraine sufferers remain undiagnosed or undertreated, leading to unnecessary suffering.
- Personalized Triggers: Migraine triggers can vary significantly from person to person, making it challenging to pinpoint specific causes.
Conclusion
During this #MigraineAwarenessWeek, let’s raise awareness, prioritise self-care, and work towards a more compassionate and understanding world for those living with migraines. Together, we can make a difference in the lives of millions affected by this condition. If you or someone you know experiences migraines, remember that you are not alone, and there is support and hope available.
#migraineawareness #selfcare #awarenessmatters #migraine #workplacewellbeing
